Category Archives: Advocacy

Survey responses needed to help with SCI priorities … Please take a moment

Posted on June 14, 2019 by christalpowell

We have questions!! Included here is a survey link (https://www.surveymonkey.com/r/MCPT5GM) asking you to rank areas of SCI related research – this will hopefully help us begin the brainstorming process to identify your interests or needs in terms of research and our abilities and resources to begin … Continue reading →

Posted in Advocacy | Tagged | Comments Off on Survey responses needed to help with SCI priorities … Please take a moment

Seeking Feedback on Research Priorities from SCI 2020

Posted on May 26, 2019 by christalpowell

The spinal cord injury (SCI) research community has experienced great advances in discovery research, technology development, and promising clinical interventions in the past decade. To build upon these advances and maximize the benefit to persons with SCI, the NIH hosted … Continue reading →

Posted in Advocacy | Tagged | Comments Off on Seeking Feedback on Research Priorities from SCI 2020

What does “Disruptive” mean? Thoughts on the NIH SCI 2020 meeting

Posted on May 12, 2019 by christalpowell

Neural Regeneration Research Article: Read the perspective from a SCI Researcher’s point of view:   On September 12 and 13, 2019, the National Institute of Neurological Disorders and Stroke (NINDS), Eunice Kennedy Shriver National Institute of Child Health and Human … Continue reading →

Posted in Advocacy, spinal cord injury research | Tagged , | Comments Off on What does “Disruptive” mean? Thoughts on the NIH SCI 2020 meeting

SCI 2020: Launching a Decade for Disruption in Spinal Cord Injury Research

Posted on September 17, 2018 by christalpowell

The goal of the ‘SCI 2020: Launching a Decade for Disruption in Spinal Cord Injury Research’ conference is to initiate discussion across the SCI research community to launch a new decade of research that disrupts traditional barriers and brings about collaborative … Continue reading →

Posted in Advocacy | 5 Comments

American Disabilities Act (ADA) gutted in the HR 620 passage today

Posted on February 15, 2018 by christalpowell

Seventeen members of ADAPT have been charged with Disruption of Congress. For many of these folks, this was the second arrest THIS WEEK in defending the Americans with Disabilities Act. The ADAPT Community honors their hard work and sacrifice. Watch … Continue reading →

Posted in Advocacy | Tagged , , , | Comments Off on American Disabilities Act (ADA) gutted in the HR 620 passage today

Airline lobby wins another big delay on reporting data for wheelchair damages and losses *January 2019*

Posted on September 21, 2017 by christalpowell

By Russ Choma Dodson’s story seems to be fairly common. His chair has also been repeatedly broken by airlines, and as the national secretary of Paralyzed Veterans of America, he hears about airlines breaking or losing wheelchairs on a regular … Continue reading →

Posted in Advocacy, Chronic Spinal Cord Injury Research | 1 Comment

SCI Stem-cell pioneer enters the political field in California

Posted on June 15, 2017 by christalpowell

Hans Keirstead, a pioneering stem-cell biologist and multimillionaire businessman who was a professor at UC Irvine for 14 years, announced Thursday he would join the field of Democrats challenging Rep. Dana Rohrabacher, R-Costa Mesa. Keirstead said the leading motivation for … Continue reading →

Posted in Advocacy | Tagged | Comments Off on SCI Stem-cell pioneer enters the political field in California

U2FP Advocates Fire Up SCI Research Funding at W2W

Posted on November 16, 2016 by christalpowell

Building on the successful model developed in Minnesota, U2FP Advocacy Director Matthew Rodreick is working with local advocates in additional states to pursue research funding at the state level. In Pennsylvania, the local group has already had a bill introduced … Continue reading →

Posted in Advocacy, Chronic Spinal Cord Injury Research, spinal cord injury research | Comments Off on U2FP Advocates Fire Up SCI Research Funding at W2W

Alliance for Regenerative Medicine (ARM) Opposes REGROW Act, Risks to Patients Cited

Posted on April 17, 2016 by christalpowell

Read the Full Article From “The Niche”: Paul Knoepfler Lab stem cell blog “I want to send kudos to ARM and its more than 250 members. For years in this debate there was a bright line between the academics as … Continue reading →

Posted in Advocacy, Chronic Spinal Cord Injury Research, Regenerative Medicine, spinal cord injury research, Stem Cell Research | Tagged , , | 1 Comment

“Spinal Cord Injury Research Support from the National Institutes of Health (NIH)” Lyn Jakeman, PhD

Posted on October 15, 2015 by christalpowell

Dr. Jakeman discusses the organization of the NIH and its role in funding of research programs on spinal cord injury and related topics. The talk will include an overview of the landscape of spinal cord injury research program support and … Continue reading →

Posted in Advocacy, Chronic Spinal Cord Injury Research, Regenerative Medicine, spinal cord injury research | Tagged , , | Comments Off on “Spinal Cord Injury Research Support from the National Institutes of Health (NIH)” Lyn Jakeman, PhD