Category Archives: Advocacy

American Disabilities Act (ADA) gutted in the HR 620 passage today

Seventeen members of ADAPT have been charged with Disruption of Congress. For many of these folks, this was the second arrest THIS WEEK in defending the Americans with Disabilities Act. The ADAPT Community honors their hard work and sacrifice. Watch … Continue reading

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Airline lobby wins another big delay on reporting data for wheelchair damages and losses *January 2019*

By Russ Choma Dodson’s story seems to be fairly common. His chair has also been repeatedly broken by airlines, and as the national secretary of Paralyzed Veterans of America, he hears about airlines breaking or losing wheelchairs on a regular … Continue reading

Posted in Advocacy, Chronic Spinal Cord Injury Research | 1 Comment

SCI Stem-cell pioneer enters the political field in California

Hans Keirstead, a pioneering stem-cell biologist and multimillionaire businessman who was a professor at UC Irvine for 14 years, announced Thursday he would join the field of Democrats challenging Rep. Dana Rohrabacher, R-Costa Mesa. Keirstead said the leading motivation for … Continue reading

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U2FP Advocates Fire Up SCI Research Funding at W2W

Building on the successful model developed in Minnesota, U2FP Advocacy Director Matthew Rodreick is working with local advocates in additional states to pursue research funding at the state level. In Pennsylvania, the local group has already had a bill introduced … Continue reading

Posted in Advocacy, Chronic Spinal Cord Injury Research, Spinal Research, Unite 2 Fight Paralysis, Working 2 Walk Science & Advocacy Symposium

Alliance for Regenerative Medicine (ARM) Opposes REGROW Act, Risks to Patients Cited

Read the Full Article From “The Niche”: Paul Knoepfler Lab stem cell blog “I want to send kudos to ARM and its more than 250 members. For years in this debate there was a bright line between the academics as … Continue reading

Posted in Advocacy, Chronic Spinal Cord Injury Research, Regenerative Medicine, Spinal Research, Stem Cell Research, Unite 2 Fight Paralysis | Tagged , , | 1 Comment

“Spinal Cord Injury Research Support from the National Institutes of Health (NIH)” Lyn Jakeman, PhD

Dr. Jakeman discusses the organization of the NIH and its role in funding of research programs on spinal cord injury and related topics. The talk will include an overview of the landscape of spinal cord injury research program support and … Continue reading

Posted in Advocacy, Chronic Spinal Cord Injury Research, Regenerative Medicine, Spinal Research, Working 2 Walk Science & Advocacy Symposium | Tagged , ,

“Advocating with Your Mind and Body” – Josh Basile

Josh delivered the Keynote Address at the 2015 Working 2 Walk Symposium. He suffered a spinal cord injury in 2004 and since that time has been an engaged advocate, providing resources for the community through his websites for Determined2Heal and … Continue reading

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CPN Joins the White House Today in Celebrating Open Innovation

Today, CPN President and CEO Ida Cahill joins Federal, state, and local government leaders, non-profit staff and private-sector supporters at a special event in D.C., titled All Hands on Deck: Solving Complex Problems through Prizes and Challenges, at Georgetown’s Downtown … Continue reading

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“Confessions of Amateur Activists”

“Confessions of Amateur Activists” – Kate Willette, Matthew Rodreick & Rob Wudlick Working 2 Walk is a fabulous conference where attendees have the opportunity to hear from, meet with, and connect to, leading researchers and advocates — all of whom … Continue reading

Posted in Advocacy, Spinal Research, Unite 2 Fight Paralysis, Working 2 Walk Science & Advocacy Symposium | Tagged , ,

Working 2 Walk Symposium Registration Sept. 27-28, 2015 – Bethesda, MD is now open!

Working 2 Walk is a two-day Science & Advocacy Symposium; you have the option to register for both days or your choice of individual days. The Working 2 Walk 2015 Symposium provides an affordable, accessible opportunity for members of the … Continue reading

Posted in Advocacy, Chronic Spinal Cord Injury Research, Regenerative Medicine, Rehabilitation, Spinal Research, Stem Cell Research, Unite 2 Fight Paralysis, Working 2 Walk Science & Advocacy Symposium | Tagged